Many people automatically assume that we aren't trying everything we can to stay upright and to keep our eyes open. Or that we haven't tried everything from diets to yoga and strange substances that are said to have mystical properties. Or we could be cured by ******* and *****. For them, we "aren't trying hard enough".

This, of course, is utter bullshit.

IH is a neurological sleep disorder and as far as we know it is lifelong and incurable. All the woo in the world won't make it go away and we are already trying our hardest.

I personally tried everything until my body literally collapsed and stopped functioning properly. I slept days in a row and have no idea how I survived High School because I have no memory of it happening besides very small moments.

I stopped chasing cures and trying to be neurotypical when I realized that for me, it is not realistic. I was pushing to be an eagle when I was a koala. I kept throwing myself off cliffs for other people and never stopped to think...maybe I am just like this? Maybe koalas don't have wings or the technology to build airplanes?

So if you have advice for us, ask yourself first: "Am I educated in this? Do I have the highest authority regarding this sleep disorder? Do I have it myself?"

If you answer NO or ignore the question, zip it. If you talk anyway, know that I would personally love to nail your face your shut forever because YOU AREN'T HELPING ANYONE.