Many of us who have IH experience frequent and disturbing amounts of microsleep attacks that interferes with our daily lives. It is a short state of unconsciousness where our brains fails to respond to sensory input. Usually that state lasts 30 seconds, but with IH brain, the state can be longer or person may experience multitude of them during the day.
I used to have them all the time before I was diagnosed and finally properly medicated years after that. It felt like I blinked and missed a chunk of class, a piece of dialogue, even part of the day due to having so many. I could not remember how I was suddenly one block away from the last moment I could recall, or how my friends were speaking gibberish that was unrelated to anything that had happened before.
In fact, it got so bad that I was kicked out of a goldsmith school due to being a hazard for everyone around me, and myself.
This is a dangerous state to be in, as your body might still be on automatic behavior and continue on without you really being on the wheel - so to speak. And sometimes, IH people have to take nap breaks so they wont crash on the car wheel too.
I personally can't drive due to my IH...but I hope this comic illustrates a little what microsleeps, which is one of many symptoms of not only IH but extreme sleep deprivation, is like.
I have to take nuvigil 3 times a day and I have to park at random places usually i try to park at a park or church or something similar to take a 90min nap when I drive. I still am allowed to drive yet only because I am extremely careful and when I get to my limit I pull over within a 3-6block radius no matter what. I once had to take a nap in the parking lot of a elementary school I called them and explained my disability of idiopathic hypersomina and they understood allowed me to nap and even thanked me for it and not risking anything.
This sleep disorder is very difficult and extremely dangerous if you don't try.
For me without my nuvigil I sleep 20hours each day minimum. Afew times I slept over 6weeks straight literally my husband thought I was dying.
I have no idea still what happened.
For me.
I feel like I have never slept a day in my life even though I will sleep 20 hours a day without medication and with medication (nuvigil) and 3 bang energy drinks each day. I still sleep on average 10-17hours on average. I miss so much. Yet I do my best and I keep going trying to find a way to live.
Trying my hardest to cope with a rare neurological sleep disorder some people don't even believe exists and yet manages to ruin my life.
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