Mornings are hell when you have Idiopathic Hypersomnia and there is many aspects to the suffering of those first hours of the day. There is sleep inertia (sleep drunkness) that keeps you chained to the bed, there is uncontrollable need to sleep more, and then there is automatic behavior (among others)-
Automatic behavior means performing a task or tasks without later having any memory of you actually doing it. Your body moves and does things while your brain is offline, so to speak.
And one of those offline things for us is often turning off all of our wake up alarms...and never even knowing that it happened.
It is like a IH monster would be turning them off for you while you are in the dreamland - leaving you confused, frustrated that you couldn't get up in time AGAIN, and often in a state of regret, pain.
But the worst one of them all, at least for me, is the disapproval of others. They can't see it as automatic behavior as we could be even talking back! and that often causes friction in relationships...resentment that the IH brain could not rise up, again.
I don't have answers how to make it better beyond taking medication very early and keeping them next to you in the morning...and hoping that they work. Nothing beyond multiple alarms, music, help of another person, light therapy, and tons and tons of understanding and care from ourselves and those who love us.
Take care everyone. I believe in you and you are not alone. <3
MY wife and I had problems with this for a few years. We ended up having to set out alarms for hours earlier than we needed to begin waking us so we could be ready for work in time. 🤣
It’s from a different source than this, but it’s relatable.
Trying my hardest to cope with a rare neurological sleep disorder some people don't even believe exists and yet manages to ruin my life.
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