Did I forget something? Did YOU forget something?
I have no idea so if you do, please comment below and remind me again...maybe next time I'll get it right.
Jokes aside (which are all based on real, daily events) IH can cause severe cognitive issues - which include MEMORY PROBLEMS. If your neurologist failed to tell you this, shame on them, but also they are entirely normal because your brain is essentially in state of sleep debt 24/7. And what happens to brain that hasn't had enough sleep? It starts dropping balls from the life's eternal juggling and memory is one of the first to take a hit.
I know mine has, as my IH has gotten worse - but medication has certainly helped. It has improved me many ways, but there is something it could never do: Bring acceptance.
Whether you are one of us who were born endlessly sleepy, or gained it along the way of life, accepting that your memory is shit is a huge piece in the puzzle of surviving, and then thriving. It doesn't mean you lay down and give up, but it does mean you can give yourself grace and find ways to deal with it instead of being all the time perplexed where the fuck your car keys went, or where is the cat?? (I locked one of ours into our trash cabin once, he was there for hours... And was entirely OK albeit he really had to use the loo)
Also acceptance lets people around you to be kinder to you, as then they can understand that hey, you forget stuff and it is NOT your fault. You are trying your BEST. Being angry and disappointed on top of it is just rubbing salt on the healing wounds. Don't do that, and don't let others to do that. Seriously.
What works though, for that I can't really give good answers - it is very individual. For some it is apps, others paper notes, some rely on friends, others have strange chaos systems in place - and I? I pretty much try them all in endless circulation.
So now when you forget something - laugh it off. Smile. You are ok.
Try again tomorrow.
Gosh you got me feeling a little chocked up with the description there! It’s been years for me but honestly I still can’t help but grieve over how much my cognitive abilities have deteriorated everytime something simple like someone talking to me while focusing on something else overloads my brain. It’s really tough remembering being a multitasking machine when I was younger to now being mentally overwhelmed by the tiniest of extra stimulus. Thank you so much for always sharing your experiences it really helps others like myself feel seen and validated 💕
Trying my hardest to cope with a rare neurological sleep disorder some people don't even believe exists and yet manages to ruin my life.
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