While posting this I am 29 years old, diagnosed with IH around age 22, diagnosed with ADHD at 25, and as of today I can say I have met more shitty medical personnel in my life than good ones. The shitty ones lead by a lot, and I'd say 8 out of 10 are just pure uneducated, unqualified, god-complex filled assholes who have zero willingness to treat anyone, to search for why someone would be suffering, and rather throw the "hot potato", also known as "patient", to someone else to be then mistreated, gaslit, and finally abandoned to the void that is in my experience - Finland's medical system.
If you have been following this long road of mine, you know I went to new sleep tests in 2022, and had new actigraphy on top of them early 2023. I did that, despite already having a diagnosis for IH because in order to try new medications that could improve my life quality and help me have a JOB I need to live in this world - the system demanded an actigraphy and all the re-tests.
Tests which went horribly.
Tests which should be done again.
Tests which in their current stage cannot prove or disprove IH.
Writing this, I am so physically and emotionally spent I don't have words for it.
And to try to explain the depths of bullshit this person put me through by both saying I "don't have IH" and trying to take away my ADHD medication (which I started for IH first) with bullshit excuse that nobody with IH gets stimulants anymore - that way equally saying that I DO have IH. The repetition, the clearly ignorant attempt to wear me out and just to agree with anything she had decided...
This kind of shit-smear of a treatment is not rare.
I know I am not alone with it, being denied proper testing, fair treatment, and being promised to not be thrown to the wayside just to be thrown to the fucking sun just the next time...and I don't have solutions.
I just have this comic to vent to, and even it is hard to do right now.
I'll keep trying to keep on.
Trying my hardest to cope with a rare neurological sleep disorder some people don't even believe exists and yet manages to ruin my life.
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