Please note that Tapas no longer supports Internet Explorer.
We recommend upgrading to the latest Microsoft Edge, Google Chrome, or Firefox.
Home
Comics
Novels
Community
Mature
More
Help Discord Forums Newsfeed Contact Merch Shop
Publish
Home
Comics
Novels
Community
Mature
More
Help Discord Forums Newsfeed Contact Merch Shop
__anonymous__
__anonymous__
0
  • Publish
  • Ink shop
  • Redeem code
  • Settings
  • Log out

Idiopathic HypersomNIA

Have a Backup

Have a Backup

Mar 08, 2025

custom banner
hiisikoloart
hiisikoloART

Creator

I know I am not alone with this so - sometimes when sleepiness is really bad, my brain fog hits like a ton of bricks. But sometimes the sleepiness doesn't need to be size of a mountain to cause intense issues, like trouble with talking, remembering the simplest answers, or understanding questions.

That is where "always carry notes with you" comes into the picture.
Before medication I had note that stated my name, address, phone number, my partner as my contact, and the topics I needed to talk about (or any relevant information). I wrote all that when my brain was not fried, so I'd have a safe way to communicate when it was fried.

I still bring notes to doctors and any meetings I have - even if I might feel like I am having a better day. I never know when that tide turns and sinks me into inability talk coherently, or causes me to have trouble to understand people.

I do this, even if I have a support person with me - just in case.

As they say "It is better to have it and not needed, than not have it and need it."

That is how I view all of the acommondations I use and need in daily life.
I don't feel shame for using them, and I rejoice when I am met with kindness (even when I can't get people to wear masks around me, while I am also immunocompromised, but that is a whole another can of worms) and understanding.

And before I go, I want to finish with a kind reminder to those who love someone with IH: Write things down for them, and with them. Dictate things, as they write things down if they can hold a pen. Writing supports memory, and many of struggle with it. Instead of adding to the struggle, support us, write things down, and remember - it is FAR MORE ANNOYING TO US NOT TO REMEMBER THINGS, than you. It is scary, it gives anxiety to us, and it hurts when it hurts you. So be kind.

See you again in two weeks! Please sub, support in ko-fi, and stay safe!

#brain_fog #brainfog #sleep_disorder #Idiopathic_hypersomnia #Sleep #disability #Disability_comic #Idiopathic_Hypersomnolence #hiisikoloart

Comments (4)

See all
Tulipia
Tulipia

Top comment

That's genius, honestly! You save so much time and energy!

2

Add a comment

Recommendation for you

  • Autophobia

    Recommendation

    Autophobia

    Romance 1m likes

  • Copper eyes

    Recommendation

    Copper eyes

    BL 1.1m likes

  • Humor me

    Recommendation

    Humor me

    Slice of life 3.2m likes

  • Strange and Wild

    Recommendation

    Strange and Wild

    Fantasy 831k likes

  • Punderworld

    Recommendation

    Punderworld

    Romance Fantasy 158.7k likes

  • Hayden's notes

    Recommendation

    Hayden's notes

    Mystery 187.4k likes

  • feeling lucky

    Feeling lucky

    Random series you may like

Idiopathic HypersomNIA
Idiopathic HypersomNIA

428.4k views353 subscribers

Trying my hardest to cope with a rare neurological sleep disorder some people don't even believe exists and yet manages to ruin my life.

Subscribe to support IH research and IH artist to keep the comic going. 50% of monetization goes to IH research, and once the comic reaches 250 you can donate Tapas INK to directly support the comic - from that I pledge 10% to IH research.

You can also support the comic by donating to me in ko-fi: https://ko-fi.com/hiisikolo_art where each donation helps me keep up making these. <3

Subscribe

168 episodes

Have a Backup

Have a Backup

187 views 14 likes 4 comments


More
Like
10
Support
List
Comment

Prev
Next

Full
Exit
14
4
Support
Prev
Next