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Idiopathic HypersomNIA

Struggle Call

Struggle Call

May 29, 2026

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hiisikoloart
hiisikoloART

Creator

<Note: I am writing this while really, really sleepy and dealing with waves of Sleep Inertia still pushing against my frontal lobe - so if I write nonsense...you know why.>

I know I should be advertizing the comic - so please buy one if you can. Ads take forever to make so I just re-use the old one. (: Oh, and leave a review if possible - they really help to fight the alogyrithm gods in Amazon.

This phone call happened last week (I think), and it demonstrates how little some people - especially government officials (and doctors, don't get me started on the doctors) don't understand, or CARE, how to communicate with people like me...like us.

In my papers reads that I have memory issues, and I always state it in the calls too. I have notes ready so I remember what I am supposed to say, and all they would need to do is to accomodate that and not do everything this person did in the call. I also reserve specific amount of time for calls so I know I won't be too worn out after.

None of my personal accomodations help if I am not given SPACE to use them.

So this is a note to people on the other end:

-Slow your pace. Fast talking is hard to process.
-STAY ON TOPIC, do not yap about information that isn't important to the receiver.
(In the case of this call, I heard information about what 50,60,and 70yo people need to know when I am in my 30s. THIS ISN'T HELPFUL.)
-Allow moments to write notes down WITHOUT YOU TALKING ON TOP.
-Ask questions, and LET US ANSWER.
-ONLY REPEAT THINGS IF ASKED.
-Don't assume information has been processed - ASK. AND WAIT FOR ANSWER.
-Silence doesn't mean you are on fire, it means you are failing at a conversation. And phone calls are ALWAYS supposed to be a CONVERSATION, not an info dump. Info dumps can always be an email.
-Mind the time, because not everyone can take long ass calls.
-Do better.

And yes, I had to fight sleep for 2 hours and hated every second of it.

I'll be back.

#phone_call #Idiopathic_hypersomnia_comic #Idiopathic_hypersomnia #sleep_disorder #Sleep #sleep_pressure #disability #disability_advocasy #Disability_comic #brainfog

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Idiopathic HypersomNIA
Idiopathic HypersomNIA

535k views354 subscribers

Trying my hardest to cope with a rare neurological sleep disorder some people don't even believe exists and yet manages to ruin my life.

Subscribe to support IH research and IH artist to keep the comic going. 50% of monetization goes to IH research, and once the comic reaches 250 you can donate Tapas INK to directly support the comic - from that I pledge 10% to IH research.

You can also support the comic by donating to me in ko-fi: https://ko-fi.com/hiisikolo_art where each donation helps me keep up making these. <3

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176 episodes

Struggle Call

Struggle Call

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