There is no cure for IH right now. There are very few medications to treat the symptoms, and only one FDA approved one specifically FOR Idiopathic Hypersomnia - and getting that medication is incredibly difficult inside and outside of USA.
In my country, very very VERY few have been able to access it due to insane amounts of red tape, and ever increasing bias in the leading doctors in the sleep related fields in Finland. I know this first hand.
Not knowing the cause, having no cure, and needing to do massive amounts of work YOURSELF to get diagnosis (if you can even get it), and medication that you may only be able to access by a stroke of luck, or by having another diagnosis that the medication is for....it is frustrating. It is exhausting. It is demoralizing to keep looking for answers and finding none.
So I understand the need to find a way to make research easier. To take short cuts. To use a "tool" tech giants keep telling you that can do all these things - but I can't ignore the downsides. AI is not the answer to this question because as of now there is no answer, and chatbots ARE NOT trained in most accurate medical data and they ARE NOT closed systems focused solely to find THAT answer.
They are trained with the worst scum of the internet, and stolen copyrighted material. They give averages based on what you have said to it, and are proven to cause detachment from reality in more cases than these companies like to admit.
Any person who thinks their AI is a real person, or who thinks that the bot and what it say is the truth without a sliver of "maybe I should verify all of this information" is detaching. And that detachment is dangerous.
Here is a wikipedia article of AI psychosis: https://en.wikipedia.org/wiki/AI-induced_psychosis
And here is a proper source for IH facts, information, and studies done by professionals:
https://www.hypersomniafoundation.org
https://www.hypersomnolenceaustralia.org.au
Trying my hardest to cope with a rare neurological sleep disorder some people don't even believe exists and yet manages to ruin my life.
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